THE PATIENT PERSPECTIVE
Advocacy: There is a huge need for focus and dedicated resources. Can it be? – Is it possible with nearly 800,000 strokes annually and millions more living with the after effects of earlier ones? Yes, there aren’t any strokeologists – that’s my word. And with the coming demographics, the numbers are going to explode over the next several years. It will get worse!
WHERE ARE THE STROKEOLOGISTS?
Stroke isn’t sexy! Actually it’s downright depressing. SO,
As a stroke survivor I believe the entire field of stroke is dramatically underserved in awareness, education, research dollars, singularly focused healthcare personnel, development efforts and fund raising.
Everything! The whole shebang!
Yes, of course I know that cardiologists and neurologists treat stroke. But that’s different. Brain, heart! These medical professionals treat many diseases – not just one.
Yet the disease is very complicated. Why?
- No two strokes are exactly alike.
- This is a customized disease! When you get customized clothing it’s the best, in heath care it’s the worst.
- There are all kinds of outcomes and collateral damages. None the same!
- There are many kinds of strokes, not just one; two broad types of strokes,
Clots termed Ischemic strokeso And there are different types of clots;
Embolic and Thrombotic strokes, large and small vessel strokes.
Bleeds termed Hemorrhagic strokes.
Doesn’t that all sound complicated? Damn right!
What is missing is a substantial body of healthcare practitioners and researcher’s who get up every morning saying:
“The only thing professionally that I am focusing on today is stroke”.
That’s what we need!
An “orphan disease” – let’s bring it in from the cold!
TOGETHER – LET’S BEAT STROKE!