Stroke Victor: Out, About, Involved & Active!

For the past eighteen years Bob Mandell has battled to recover from a massive stroke that left him in a nursing home at 53. Incontinent, paralyzed on one side and in a wheel chair, unable to speak, think, write, or do much of anything else, his life turned into a disaster! Fast forward to today: life after stroke can be beautiful. Bob remains out, about, involved and active.

Here are some of the conferences and events that Bob has attended recently this year.

The Canadian Partnership for Stroke Recovery was held in Ottawa, Canada June 9-10, 2014. The meeting was held to discuss new research in stroke recovery and after stroke considerations. The research is currently in various stages of investigation and approval. Bob was honored to be invited to be a media person at the scientific meeting. Above is Bob with Dr. Dale Corbett (left) and Dan McEwen, a PH.D. student (right). 

 


Stroke-victor-affiliate-summit-NY


The Affiliate Summit was held in New York at the Marriott Marquis on Aug 9-12 2014.

About 4,000 marketing professionals attended to discuss affiliate marketing techniques, deal making, and to network about their interests. Bob was invited to attend and he spent time learning how to  use some of these techniques. The plan is to incorporate some of these methodologies in his Stroke Victor initiative which is in the planning stages. He met with speakers as well as many attendees who were in support of this important effort.

Pictured to the left is Bob with Keynote speaker Dr. Julie Gurner and Affiliate Summit founders Shawn Collins and Missy Ward.

 


Stroke Victor Blog!

Welcome!

This is the beginning a new journey for me, to blog about current issues impacting the broad field of Stroke from a patient perspective. This seems like a sensible way to follow-up the publication of my new book, Stroke Victor, The Guide Book To Beating The Odds After Stroke and other Disabilities. The book is currently with the publisher and will be available in PDF form later in July and as a paperback by August 30th. The official publication date will be in September when everyone returns from the beach!

Recovery is a work in progress and the field of Stroke is a work in progress, incidentally, one that critically needs to be speeded up.

The plan is to comment at least weekly on subjects like new rehabilitation techniques, new research on impacting stroke, diet and fitness issues effecting stroke survivors, current articles and events in the field of brain injuries and stroke and any other stroke related information that I find in the future.

I hope that these posts will be constructive to the extended stroke community. Your comments and suggestions are greatly appreciated. Please comment and join the conversation!

What’s New?

Stroke Victor, The Guide To Beating The Odds After Stroke and Other Disabilities, New Book at Publisher – Pre- Publication Date July 30th

Partnership For Stroke Recovery – Invited Media Guest at June 9-10th Meeting in Ottawa, Canada

Stroke Victor Blog – Lift- Off

SERVICES

Speaking Engagements

The Patient Perspective -Why No Strokeologists?

Disrupting Clinical Research – A Path To Improved Profitability and Faster Patient Outcomes – Concrete ideas borne out of patient experiences

Attitude Therapy – Motivational Talk – A New Tomorrow

Consulting Engagements

Improving Efficiencies in Clinical Research – A New Approach to Managing and Conducting Research
from A Patient Who was also a Partner in a Management Consulting Firm

Attitude Therapy – Grow or Fix Your Business Using Principles I Learned While Recovering From A Stroke


Naples Resident Invited to Attend Noted Canadian Partnership for Stroke Recovery Meeting

Bob Mandell, a Naples resident, known as the “Stroke Victor” (the title of his upcoming book), has been invited to attend the noted Canadian Partnership for Stroke Recovery Meeting “Advances in Stroke Recovery” held in Ottawa, Canada June 9 and 10.

In addition to meeting with high-level physicians and researchers, he will be posting articles and blog posts during and after the meeting in order to make the US stroke community aware of the progress towards creating new stroke recovery solutions being developed in Canada.

This unique forum is designed to showcase innovation in the field of stroke recovery. Sessions will highlight the latest research related to new technologies (including robotics), new approaches to stimulate brain recovery, and new clinical practices and approaches to maximize the benefits of rehabilitation.

The objectives of the meeting are:

• to showcase recent innovation in the field of stroke recovery, both within Canada and globally;
• to identify potential new areas of research and forge research collaborations;
• to provide an interactive environment that fosters lively discussion and debate related to approaches to stroke recovery; and
• to provide trainees interested in stroke recovery a forum to showcase their work and learn from leaders in the field.

Advances in Stroke Recovery is hosted by the Heart and Stroke Foundation Canadian Partnership for Stroke Recovery (CPSR). This one-of-a-kind research partnership brings together leading Canadian researchers, research institutions, and the Canadian Heart and Stroke Foundation with the aim of restoring the lives of those affected by stroke. The keynote speaker is Dr. Bruce Dobkin, former editor-in-chief of Neurorehabilitation and Neural Repair.

Stroke Victor will be available prepublication in PDF form in late June and in paperback in late July and will be published in September.

Bob Mandell can be reached at bob@strokevictor.com or at 239-249-9575.


Inspirational recovery is a gift for our brightest students – Florida Weeky

From Profiles in Paradise

Florida Weekly

See the whole story, Click Here

What would it be like to lose your ability to walk, even move, to express yourself or to take care of your most basic daily needs?

Bob Mandell knows.

Bob Mandell Stroke Victor Author

Bob Mandell
Stroke Victor Author

He was 53 years old in January 1996 when a massive stroke robbed him of all of the above. He’s been on my show several times to share the story of his inspiring recovery.

On the day of the stroke, he left work with a severe headache and feeling like he had the flu. He had just climbed into bed at the townhouse he shared with his wife, Debbie — they had been married for just 18 months — in Connecticut when he realized his whole right side was going numb.

Though paralysis was setting in, he managed to call 911 and told the operator what was happening, but not to send anyone because the front door was locked (stroke victims, suffering an attack on the brain, become confused and sometimes don’t make the best decisions).

When Debbie arrived home, she called 911, and by the time the ambulance got there, Bob had passed out.

The stroke left him paralyzed on the right side, initially unable to speak or think very much, write or even go to the bathroom unattended. Doctors told Bob he would need a wheelchair the rest of his life.

But he worked relentlessly with his therapists, ar focusing on small victories and refusing to accept defeat.

See the rest of the story here


800,000 Strokes – Where Are The Strokeologists?

THE PATIENT PERSPECTIVE

Advocacy: There is a huge need for focus and dedicated resources. Can it be? – Is it possible with nearly 800,000 strokes annually and millions more living with the after effects of earlier ones? Yes, there aren’t any strokeologists – that’s my word. And with the coming demographics, the numbers are going to explode over the next several years. It will get worse!

WHERE ARE THE STROKEOLOGISTS?

Stroke isn’t sexy! Actually it’s downright depressing. SO,

As a stroke survivor I believe the entire field of stroke is dramatically underserved in awareness, education, research dollars, singularly focused healthcare personnel, development efforts and fund raising.

Everything! The whole shebang!

Yes, of course I know that cardiologists and neurologists treat stroke. But that’s different. Brain, heart! These medical professionals treat many diseases – not just one.

No focus!

Yet the disease is very complicated. Why?

  • No two strokes are exactly alike.
  • This is a customized disease!  When you get customized clothing it’s the best, in heath care it’s the worst.
  • There are all kinds of outcomes and collateral damages. None the same!
  • There are many kinds of strokes, not just one; two broad types of strokes,

Clots termed Ischemic strokeso   And there are different types of clots;

Embolic and Thrombotic strokes, large and small vessel strokes.

Bleeds termed Hemorrhagic strokes.

Doesn’t that all sound complicated? Damn right!

What is missing is a substantial body of healthcare practitioners and researcher’s who get up every morning saying:

“The only thing professionally that I am focusing on today is stroke”.

That’s what we need!

An “orphan disease” – let’s bring it in from the cold!

TOGETHER – LET’S BEAT STROKE!

 


Improving Clinical Research To Improve Patient Outcomes

DISRUPTIVE INNOVATION IN CLINICAL RESEARCH RESULTS IN DRAMATICALLY IMPROVED PATIENT OUTCOMES AND INCREASED PROFITS  A PATIENT PERSPECTIVE

OUTLINE

ABSTRACT: Clinical research needs a large dose of disruptive innovation!

  • Clinical research – an enormous area
  • Growth engine in the pharmaceutical, biotech and other healthcare areas

o   Organic growth through research – an important element in financial valuation of medical enterprises

o   Time is money

THE PROBLEM

  • Public has little knowledge or understanding of process
  • Public has little knowledge the benefits of participating in research
  • Public has little understanding of access
  • Public has negative misperceptions regarding process

AS ACTIVE PATIENT – MY PERCEPTIONS OF CHANGES NEEDED

  • Disruption in current process leads to constructive innovation
  • More effective recruiting
  • New reimbursement and patient plans
  • Training of front line personnel
  • Overall faster process

RESULTS HELP US ALL

  • Faster approvals result in medical innovations and improved patient outcomes
  • Faster study determinations result in improved corporate financial performance impacting stock valuations and bottom lines

 

WE ALL WIN!


C. William Colburn, Ph. D – Testimonial

Professor-William-Coburn-Thought LeaderBob Mandell’s story of overcoming a truly substantial health challenge is compelling and it is inspiring.  

He has earned the title “Stroke Victor.”  Those who have heard his story of recovery have been unanimous in urging him to share his remarkable achievement with others.  I am among those who have asked Bob to take his story to audiences young and old.  As an Emeritus Professor of Communication at the University of Michigan, I can attest not only to the wonderful story to be told but to the extraordinary skill with which the story is presented.

For the program planner, conference coordinator, or the individual simply looking for a great speaker, with an unbelievable story of overcoming the odds, Bob Mandell is the man.

C. William Colburn, Ph.D

Emeritus Professor, The University of Michigan